8/3/09 Updates

I went to visit Rachel today and it was a pretty big day for her. She had her CT scan and it came back normal. She does not have any bleeding in her brain and the fluids surrounding her brain appear to be normal! Yeah that's a good thing. She will have another scan when she is between 28-32 weeks. Which is prett normal. If there was this scan looked weird she would have had another one sooner.

They did remove one of her umbilical cord lines. The one that was giving her some of the nutrients, but those same nutrients will be given through her picc line. They did keep the other line in at least until Wednesday. That is the day she has her next echo to check on the heart murmer. She had her last dose of Indomethacin today at 2, so they are giving it some time to work to see if the whole will close. She has a soft murmer, but the hole is pretty big and that's what is causing concern. We will cross the bridge of surgery if it comes to that.

Wednesday could prove to be a bigger day for her, if the murmer is gone, her other umbilical cord line could be removed, and they will start some small feedings!! And the best part about that whole thing is we can finally hold her!!! Keeping all prayers and thoughts that the 2nd round worked!! I want to hold my daughter!!!

I did get to "cradle" her today during her last dose of medicine. What I got to do is have her head in my left hand and her feet cradled in my right so she was contained my me instead of the little froggy things they use. It was so awesome!! She kept flexing her feet in my hands, but she did stay calm and restful, which is what that is supposed to do. I held her for a good 25 minutes. Lost feeling in my arms, but it was SO worth it. She also took the removal of her line like a champ....she let them do what they needed to and didn't fidget! Of course when they were done she started to, but that's what she does best.

More updates after tonight's visit


Love,
Jenny and Rob