Well today was one of those down days for Rachel. She had a transfusion to help lift her red blood count up, again that is normal, but still a little tough to see her little arm wrapped up. They also moved her back up on the ventilator. When we left tonight she was at 60. Basically she is not breathing above the ventilator. Which again is normal. She is still pretty little to be breathing on her own.
Part of the problem could be she has a little air leak with her tube, but they do not want to change her to a bigger tube because it would be too big for her. They did start little feedings today. She will get 1.5ml every 3 hours. It's just to get her tummy ready for bigger feedings. The small ones will be for about 7-10 days.
I did get to hold for a little bit today - just while they were changing her bedding. I'm hoping tomorrow I can hold her a little longer. My parents came up to see her for the first time tonight so that was nice she had some visitors. She was on her tummy again tonight, which she loves. She was more restful laying like that then she was today on her back.
She did open both eyes today, but was pretty much sleeping while we were there tonight, which she needs to be doing!!! Between today and yesterday it's been an emotional roller coaster for me. They told us to expect ups and downs, but being told that and actually seeing it happen is harder then I ever imagined.
I am hoping that tomorrow is a better day for Rachel and that tonight is an uneventful one!
More updates tomorrow.
Love,
Jenny
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Jennifer, I can ONLY imagine the emotional roller coaster. But ... I don't know what to say except. I will not stop thinking about baby Rachel and you " Mommy". Bless you Jennifer. A woman once told me how she got through motherhood (and she has 10 children) she stays on her knees.
ReplyDeleteYvette