We just got back from our "good night" visit with Rachel. She was resting comfortably and had a pretty good day. I was there earlier for a couple hours and the biggest thing going on was she kept going up and down with her oxygen level.
They don't like it too high, but it should not fall below 82. She kept fluctuating. It's pretty normal, but all the alarms were a bit much for me! She did gain some weight from Friday. She is now 684 grams or 1.8 pounds. That's a step in the right direction! Once she gets started on small feeds she will hopefully gain more!!
They also did her second echo and the PDA is still there so they started her second round of Indomethacin. She got her first dose at 2pm, she'll get the second at 2am and then the last at 2pm tomorrow. They could do the 3rd echo as soon as Tuesday morning to see if this round worked. If not, the next step is heart surgery to close the hole.
Rob held her hand while we were there and she held on for quite a while, as if to say "Dad, I'm okay and we are going to be just fine". His hand is about the size of her body! Once we download those pictures I will post them, but since Rob is going back to work tomorrow we are calling it an early night. Stay tuned for more updates tomorrow!
Love,
Jenny and Rob
Subscribe to:
Post Comments (Atom)
Jennifer, as I have said to you and in text.. my prayers are with you, your Husband and Rachel,you new miracle. Jennifer just remember everything is in Divine order... she was sent to you for a reason. Blessings.. I look forward to watching her grow too :)
ReplyDeleteYvette